The Robin Sequence Consensus Meeting 2025 is an international scientific and medical gathering entirely dedicated to Pierre Robin Sequence, a rare and complex condition requiring multidisciplinary care.

This event will bring together leading experts in the field, healthcare professionals, researchers, patient associations, and families directly affected by the condition.

The main goal of this meeting is to foster innovation and collaboration to meet the needs of patients with Pierre Robin Sequence. Together, participants will work to establish an international consensus on clinical practices, management strategies, and research pathways to significantly improve patients’ quality of life.

Due to its complexity and multisystemic implications, Robin Sequence demands an integrated and cohesive approach. This meeting will provide a platform to:

• Share the latest scientific and medical advancements.
• Unite key stakeholders from the medical and advocacy communities.
• Build a consensus for more effective and inclusive care.

Beyond academic exchanges, the event will also highlight the daily challenges faced by patients and their families, giving a strong and active voice to their experiences.

Join us for this pivotal day dedicated to transforming the management of Pierre Robin Sequence and building a future of hope and progress for all those impacted.

At the initiative of Christian Poets, a post-congress workshop on TPP will be held to share experiences and challenges, but most importantly, to provide guidance to teams interested in developing it.

This workshop will take place on Saturday, April 5, from 9:00 AM to 3:30 PM, at Necker Hospital, in the meeting room of the General Pediatrics Department.

As seating is limited, only the first 40 registered participants will be able to attend on-site. If you are interested, please register via the following link:
Registration Form.

A Zoom link will be available for other participants.