National diagnostic and care protocol (PNDS) dedicated to hemolytic uremic syndrome (HUS)

Réseau d'information sur les maladies rares de Necker
Réseau d'information sur les maladies rares de Necker
11/02/2021
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Thrombotic microangiopathies

French national reference center for thrombotic microangiopathies The thrombotic microangiopathies study network was labeled in August 2006, then re-labeled in 2017 and 2023, as the national reference center for thrombotic microangiopathies. The low incidence of thrombotic microangiopathies (TMA), the level of expertise required to manage them and their life-threatening severity in the short term fully [...]
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Centre de référence des maladies rénales héréditaires de l’enfant et de l’adulte (MARHEA)

Hereditary kidney diseases in children and adults (MARHEA)

French national reference center for hereditary kidney diseases in children and adults (MARHEA) Rare kidney diseases most often have a genetic origin. The diagnosis of these diseases is confirmed by analysis of the responsible genes. The mission of the rare diseases center MARHEA is to take charge, in all its different aspects, of rare renal [...]
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