What is « La Suite-Necker » ?

This is a space, located within the Necker hospital, for young people aged 13 to 25 years old who are being followed for a rare and/or chronic disease. Within this space, we offer, by appointment, individual or collective resources to accompany young people in a global way in this period of transition; between adolescence and adulthood and before and after the passage in adult hospital… Marion Houssin welcomes young people and their families from monday to friday from 10am to 6pm to give them information on what the platform offers.

« La Suite » is also a website and a mobile application, « La Suite-Necker », with different resources to manage one’s illness independently and to prepare for the transfer to an adult hospital.

The « La Suite – Necker » project was born in 2014 and the space opened in September 2016, put together by Dr Mahlaoui and Ms Langellier.

How is this care provided ?

Young people are free to come as many times as they like. We are contacted in different ways; young people are referred by medical teams (doctors, interns, educators, nurses, psychologists, etc.) or young people or their parents come by or call us to make an appointment themselves.

We offer individual meetings with :

• a gynaecologist to discuss periods, puberty and contraception.
• a psychologist for educational and vocational guidance or, more generally, for future plans.
• a teacher of adapted physical activity to get back in shape.
• a socio-aesthetician for all beauty treatments and advice for the skin.
• an image consultant to help you find your style.
• two Shiatsu practitioners to relax and reconnect with your body.

To be noted

« La Suite » is not reserved for young people in hospital. They can come by appointment whenever they want: during consultations or outside, whenever they feel the need. However, when young people are hospitalised and cannot move around, all the staff can come to their rooms. Whenever possible, sessions at « La Suite » are preferred…

We also have group workshops :

• « Rock your style » : a dream shopping session with a medical stylist, an image consultant and a professional photographer, to help young people find their style and adapt clothes to their medical devices, their morphology and their taste.
• « Tell me about your passion so I can discover mine » :3 sessions over 1 year : 2 days of meetings with professionals who are passionate about their profession and have had atypical careers (actor, gendarme, Stéphane Marie, Thierry Marx, journalist, companion of duty). The last session is a discussion on what these exchanges have brought out in each person, led by the psychologist in charge of guidance.
• Therapeutic relaxation on pain management with a nurse from the pain and palliative care service and a psychologist.
• Social rights with two social workers
• « The patient-heroes » : first aid training to learn life-saving gestures and thus be able to save lives, led by emergency doctors from the association « Les Transmetteurs ».

What’s new this year ? 

• Meditation sessions for parents with Joëlle Portalie, because for them too the transition is an important and stressful period. Starting October 7th at 3:30 pm.
• Duo shiatsu sessions: Parent/Child, to reconnect with your child, outside of care, and give him/her the space to become autonomous. From October onwards on request.
• Sexology consultations: if you have questions about sexuality and how to talk about your illness in your intimate relationships. Starting in November.

The platform has been awarded the Prix Galien in 2019, in the « patient support » section!
> Learn more

Interview by the association « La vie par un fil »

Contact

Marion Houssin
Coordinator of « La Suite-Necker » transition platform

+33 1 44 49 53 09
+33 6 21 62 52 59
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Open monday to friday from 10am to 6pm