Dear friends and colleagues,
We are very enthusiastic to organize with you the very first World Congress on Rare Skin Diseases in Paris from 7 to 9 June 2022. We count on you to bring your knowledge, experience and originality! We will get together the medical teams, scientists, patient representatives, policy makers, as well as industrial actors. Our common goal is to boost the collaboration between specialists from different centers and countries and to increase research and clinical trials in order to improve patients care and quality of life. In addition, we want to involve more and more the younger generation in the management of rare skin disorders.
The program is articulated around:
- 4 plenary sessions discussing on multidisciplinary management of rare disorders, clinical trials, orphan drugs, active research, and rising stars
- 28 parallel workshops on the various diseases and topics, (genodermatoses, complex vascular anomalies, auto-immune bullous diseases, autoinflammatory disease, hidradenitis suppurativa, neurofibromatosis, severe cutaneous drug reactions, rare skin cancers, hair abnormalities, pigmentation disorders, puzzling histological cases, social aspects of rare skin diseases, etc.)
- 1 poster session (there will be a call for posters)
- 2 training sessions : “Juniors challenge Seniors!” and a dedicated training session for French speaking countries (“Formation à partir de cas cliniques”).
We are counting on you to join and share this new adventure to improve patient care. Join us for 3 days to share the dynamism and commitment of the scientific community and to move forward together. We hope that many of you will be able to attend! See you in Paris!
Christine Bodemer, ERN-Skin coordinator
Maya El-Hachem, President of the Rare Skin Diseases Network of the Fondation René Touraine
> Download the 3-day programme
> Submit your abstract (from the 3rd of February to the 10th of March 2022)
Tuesday June 7th 2022
Wednesday June 8th 2022
Thursday June 9th 2022
Public
Medical and paramedical professionals, students, industrialists.
- Session : Patient perspective session – building global innovative collaboration for improved quality of life?
- Opening of the congress : plenary session : Rare skin diseases: an oppportunity for frequent diseases! Lessons from rare skin diseases
- Workshop 1 : Epidermolysis bullosa and fragility syndromes (1)
- Workshop 2 : Hidradenitis suppurativa and related conditions
- Workshop 3 : Inherited connective tissue disorders
- Workshop 4 : Epidermolysis bullosa and fragility syndromes (2)
- Workshop 5 : Severe drug reactions (1)
- Workshop 6 : Cutaneous vasculitis
- Workshop 7 : Rare mosaic skin conditions
- Workshop 8 : Severe drug reactions (2)
- Workshop 9 : Neurofibromatosis
- Plenary 2 : How to diagnose a rare skin disease
- Workshop 10 : Complex vascular malformations and tumors (1)
- Workshop 11 : Xeroderma pigmentosum
- Workshop 12 : Autoimmune bullous diseases (1)
- Workshop 13 : Complex vascular malformations and tumors (2)
- Workshop 14 : Puzzling histological cases
- Workshop 15 : Autoimmune bullous diseases (2)
- Plenary 3 : Clinical trials and rare skin diseases: a challenge?
- Workshop 16 : Ichthyosis & palmoplantar keratoderma (1)
- Workshop 17 : Rare skin cancers (1)
- Workshop 18 : Autoinflammatory disease of the skin (1)
- Workshop 19 : Ichthyosis & palmoplantar keratoderma (2)
- Workshop 20 : Rare skin cancers (2)
- Workshop 21 : Autoinflammatory disease of the skin (2)
- Training : Juniors challenge seniors!
- Plenary 4 : Active research in rare skin diseases (rising stars)
- Workshop 22 : Undiagnosed rare skin diseases
- Workshop 23 : Other rare diseases of the skin (1)
- Workshop 24 : Pigmentation disorders
- Workshop 25 : Incontinentia pigmenti
- Workshop 26 : Poster session
- Workshop 27 : Training based on clinical cases
- Workshop 28 : Other rare diseases of the skin (2)
- Workshop 29 : Ectodermal dysplasia
- Workshop 30 : Social aspects of rare skin diseases
- Closing