The Necker-Enfants malades university hospital is a key player in the care of rare and chronic diseases and disabilities. Patients suffering from these diseases account for more than a third of its activity > Order of November 25, 2017 on the labeling of networks of reference centers taking care of rare diseases.
To discover the different specialized teams of our hospital, click on the FLASHING GREY BUTTON corresponding to the group of diseases you are interested in.
NECKER IN THE SPOTLIGHT
On the occasion of international rare disease Day on 28 February 2023,
the rare diseases commission of the AP-HP.Centre – Université Paris Cité
Pr Christine Bodemer, president
the AP-HP.Centre – Université Paris Cité hospital group of Necker-Enfants malades | Cochin | Georges-Pompidou | Hôtel-Dieu hospitals
Claire Poyart, president of the local medical commission
Didier Frandji, director general
The Imagine Institute
Pr Stanislas Lyonnet, director
are organizing a scientific conference bringing together the rare disease reference centers of their campus and their partner research laboratories with the aim of highlighting the strength of its translational research, the integration of clinic and research, and to contribute to its fertilization through a day of exchanges, sharing and meetings.
The objective is to maintain the spirit of openness, notably to our partner patient associations and to the public, but also possibly to city networks, during this international Day dedicated to rare diseases.
The organization of the Day will allow participants to attend presentations on a theme of their research by care and research teams of our CHU (15 minutes of presentation, 10 minutes of Q-R, time for discussion open to all participants in this day) and information conferences on the policies of support to rare diseases of our institutions.
IN NECKER, RARE DISEASES IN BRIEF ...
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Within the AP-HP.Centre – Université Paris Cité university hospital group, rare diseases are also :
Georges-Pompidou European hospital
Cochin hospital and Hôtel-Dieu