The Necker-Enfants malades university hospital is a key player in the care of rare and chronic diseases and disabilities. Patients suffering from these diseases account for more than a third of its activity > Order of December 26, 2023 on the labeling of networks of reference centers taking care of rare diseases.
To discover the different specialized teams of our hospital, click on the FLASHING GREY BUTTON corresponding to the group of diseases you are interested in.
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NECKER IN THE SPOTLIGHT
IN NECKER, RARE DISEASES IN BRIEF ...
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patients followed at least once a year*
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medical consultations*
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day hospitalizations*
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fully hospitalized patients*
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teleconsultation procedures*
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authorized therapeutic education programs*
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patients trained in therapeutic education*
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current research projects*
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university courses*
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publications*
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reference centers*
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competence centers*
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ressources and competence center*
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rare diseases health sectors represented on the site*
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rare diseases health sectors animated on the site*
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european rare diseases health sector animated on the site*
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teams involved in 16 European Reference Networks (ERNs)*
*data valid for 2022
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Within the AP-HP.Centre – Université Paris Cité university hospital group, rare diseases are also :
Georges-Pompidou European hospital
Cochin hospital and Hôtel-Dieu
FRENCH RARE DISEASES HEALTHCARE NETWORKS AT NECKER-ENFANTS MALADES HOSPITAL
EUROPEAN REFERENCE NETWORKS (ERN) FOR RARE DISEASES AT NECKER-ENFANTS MALADES HOSPITAL