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The Necker-Enfants malades university hospital is a key player in the care of rare and chronic diseases and disabilities. Patients suffering from these diseases account for more than a third of its activity > Order of November 25, 2017 on the labeling of networks of reference centers taking care of rare diseases

To discover the different specialized teams of our hospital, click on the FLASHING GREY BUTTON corresponding to the group of diseases you are interested in.

NEWS

NECKER IN THE SPOTLIGHT

Bandeau journée maladies rares 2023

On the occasion of international rare disease Day on 28 February 2023,

the rare diseases commission of the AP-HP.Centre – Université Paris Cité

Pr Christine Bodemer, president

the AP-HP.Centre – Université Paris Cité hospital group of Necker-Enfants malades | Cochin | Georges-Pompidou | Hôtel-Dieu hospitals

Claire Poyart, president of the local medical commission
Didier Frandji, director general

The Imagine Institute

Pr Stanislas Lyonnet, director

are organizing a scientific conference bringing together the rare disease reference centers of their campus and their partner research laboratories with the aim of highlighting the strength of its translational research, the integration of clinic and research, and to contribute to its fertilization through a day of exchanges, sharing and meetings.

The objective is to maintain the spirit of openness, notably to our partner patient associations and to the public, but also possibly to city networks, during this international Day dedicated to rare diseases.

The organization of the Day will allow participants to attend presentations on a theme of their research by care and research teams of our CHU (15 minutes of presentation, 10 minutes of Q-R, time for discussion open to all participants in this day) and information conferences on the policies of support to rare diseases of our institutions.

> Consult the Day’s program

IN NECKER, RARE DISEASES IN BRIEF ...

0
patients followed at least once a year*
0
medical consultations*
0
day hospitalizations*
0
fully hospitalized patients*
0
teleconsultation procedures*
0
authorized therapeutic education programs*
0
patients trained in therapeutic education*
0
current research projects*
0
university courses*
0
publications*
0
reference centers*
0
competence centers*
0
rare diseases health sectors represented on the site*
0
rare diseases health sectors animated on the site*
0
european rare diseases health sector animated on the site*
0
teams involved in 16 European Reference Networks (ERNs)*

*data valid for 2021

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Within the AP-HP.Centre – Université Paris Cité university hospital group, rare diseases are also :

corps adulte HEGP

Georges-Pompidou European hospital

corps adulte CCH _ surrénale corrigée Cochin

Cochin hospital and Hôtel-Dieu