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The Necker-Enfants malades university hospital is a key player in the care of rare and chronic diseases and disabilities. Patients suffering from these diseases account for more than a third of its activity > Order of December 26, 2023 on the labeling of networks of reference centers taking care of rare diseases

To discover the different specialized teams of our hospital, click on the FLASHING GREY BUTTON corresponding to the group of diseases you are interested in.

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NECKER IN THE SPOTLIGHT

IN NECKER, RARE DISEASES IN BRIEF ...

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patients followed at least once a year*
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medical consultations*
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day hospitalizations*
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fully hospitalized patients*
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teleconsultation procedures*
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authorized therapeutic education programs*
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patients trained in therapeutic education*
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current research projects*
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university courses*
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publications*
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reference centers*
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competence centers*
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ressources and competence center*
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rare diseases health sectors represented on the site*
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rare diseases health sectors animated on the site*
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european rare diseases health sector animated on the site*
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teams involved in 16 European Reference Networks (ERNs)*

*data valid for 2022

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Within the AP-HP.Centre – Université Paris Cité university hospital group, rare diseases are also :

corps adulte HEGP

Georges-Pompidou European hospital

corps adulte CCH _ surrénale corrigée Cochin

Cochin hospital and Hôtel-Dieu

FRENCH RARE DISEASES HEALTHCARE NETWORKS AT NECKER-ENFANTS MALADES HOSPITAL

Logo AnDDI-Rares Logo brain team Logo cardiogen Logo Defiscience Logo FAI2R Logo Fava-multi Logo Filfoie Logo filnemus Logo fimarad Logo Fimatho Logo Firendo  Logo g2m  Logo marih Logo mcgre  Logo MHEMO  Logo MUCO_I_CFTR  Logo Neurosphinx  logo-orkid-officiel Logo OSCAR Logo respifil Logo Sensgene Logo tetecou

EUROPEAN REFERENCE NETWORKS (ERN) FOR RARE DISEASES AT NECKER-ENFANTS MALADES HOSPITAL

Logo ERN Vascern Logo ERN RITA  Logo ERN guardheart Logo ERN Transplantchild Logo ERN EpiCARE Logo ERN Eye Logo ENDO-ERN Logo ERN ERKNet Logo-ERN-ITHACA Logo Eurobloodnet Logo ERN Bond  Logo ERN Skin logo rare-liver  Logo ERNICA Logo ERN-LUNG Logo eUROGEN Logo Euro-NMD Logo ERN Cranio Logo MetabERN Logo ERN Reconnet